Wed 21 Nov 2007
the sixth circle of limbo
Posted by bon under coping stuff
so, anybody ’round these parts friends with, um, Tom Cruise & Katie & their fun Scientology crew?
’cause if you’d like to theft their much-reported personal ultrasound machine and bring it on over to my house, that would be really, like, cool.
i saw my doctor today. my blood hcg levels are rising appropriately, apparently, so that means that either there’s a baby in there that last week’s ultrasound missed, or that nobody’s filled my poor body in on what’s really going on. totally inconclusive. and because we live in a city (or rather, a glorified hamlet) where the six OBs all share one clinic but have absolutely zero ultrasound equipment at said clinic, i have to wait until the overloaded, overstressed diagnostic imaging department at the local hospital - who do every x-ray, CATscan, MRI, and ultrasound for every medical condition within a fifty-mile radius - get around to fitting me back in. maybe tomorrow. maybe two weeks from now. sweet merciful jesus, the waiting. i don’t know who has the mental stability this waiting demands. i don’t…i’m eroded and drained and cycling through the stages of despair in ever shorter circles, like a poodle chasing its tail.
and yet, i couldn’t title this post “the sixth circle of hell”…i tried, and changed it. because there’s still this shred of hope. and it’s excruciating even to contemplate, and feels mostly like a nasty trick i’m trying to keep juggled up in the air along with all the lead weights just waiting - aching - to fall on my head. but it’s there, waving its eager hand in the air while i try desperately to master the mysterious art of non-attachment. and i’m trying to look at it as good, that hope. i remember realizing with surprise, after Finn died, that the not knowing that had been so torturous during the long weeks of bedrest with that failing pregnancy was not nearly so terrible as having to confront the finality of knowing, in the end.
i do not think it would be quite that way again, this time. but still, i’m trying to let hope linger around and not kick it to the curb prematurely. trying.
but if anybody wants to FedEx me that Tomkitten ultrasound machine thingy, only slightly used…that would be most kind.
37 Responses to “ the sixth circle of limbo ”
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December 21st, 2007 at 5:40 pm[...] then, i could thread soul and body together when i wanted to, if sketchily. but not during the limbo of this [...]













November 22nd, 2007 at 3:59 am
That is awful. I am so sorry. I guess I can see the ignorance is bliss side of the arguement but waiting eats me alive. I’ll be praying for you. Praying that the machine will show you that tiny heartbeat that was hidden before. I would give you a hug and a slice of my peanut butter pie in the fridge if you were here.
November 22nd, 2007 at 4:26 am
I am sorry. This sucks.
I certainly don’t have the patience for waiting in things like this. But then I am also very spoiled– the OB practice where my doctor works has their own machines. Three or four, I believe. And the RE has one in his office. And there is a radiology department with big ass machines for things not pg-related. Wanna move?
As for hope… I find that even when I think you have kicked it, that you have managed to not attach, when things go bad, it turns out it was all a screen, and that hope hang around anyway. So yeah, letting her stay, and keeping an eye on her may be the only thing to do.
November 22nd, 2007 at 4:29 am
RRAAAGGGGH!
But oh, hope…. hope?
It’s 12:28 AM and that’s all I can manage. In limbo with you, chasing my tail.
November 22nd, 2007 at 4:33 am
oh bon. could you drive to a larger city and get an ultrasound? maybe it would be worth a long ride?
November 22nd, 2007 at 4:42 am
Ack, Bon - seriously, I agree: can you get to a place where you can have your ultrasound? I mean, that’s just plain cruel on your heart - to have to wait even more to just KNOW? I am so completely relieved to hear your numbers are going up, as that is a major indicator. But…you can’t rest on that alone, and you shouldn’t have to at this point. Drive, woman, drive. Can you? Prayers and all sorts of positive vibes headed north and east and a bit further northward, your way - (hugs)
November 22nd, 2007 at 5:09 am
oh, honey.
November 22nd, 2007 at 5:22 am
argh. Can’t fathom how frustrating and scary and anxiety-ing this must be. Can you go to H’fx? I’d think that your fear and anxiety are damn good reasons for you to go up the queue locally - pitching a firm but non-karma unbalancing fit wouldn’t be out of line.
Be hopeful. We’re adding our own hopes for you from over here.
November 22nd, 2007 at 6:43 am
Ieee Mama… I’m hoping with you. I am so hoping with you.
November 22nd, 2007 at 10:59 am
I wish I could, oh I do wish I could get you that machine and some answers.
I want to tell you a story and I want you to know I don’t mean to say anything by it (which negates the point of telling but anyway…)
I don’t know if you read my blog when I shared our IF and PG stories. When I got HCG tested for the 8th millionth time in March 2001, it was positive but the doctor dismissed it. 20. That’s not pregnant, that’s miscarrying and almost finished. So there I was a little pregnant but not really and losing it. They wanted to keep testing to watch my levels, make sure my body finished its job—wow that’s ironic, my body finish its job. Its job was to get and STAY pregnant. Apparently somebody forgot to send my body that memo.
So every two days for two weeks I went in to get tested. And every two days I was still a little pregnant but miscarrying. “Don’t get attached,” they told me, as if that was possible. It wasn’t ectopic but there weren’t appropriate signs of life. Something was obviously not right, they said, and any time my body would abort, they told me. What an ugly thing to say to me, despite not meaning it cruelly. I knew they felt for me, knew what we’d been through and wanted what I wanted too. So we kept drawing blood and testing it and one month after the positive HCG they decided to upgrade me to sort of pregnant but don’t get hopeful or attached.
Eight months later we were all still anxious, especially when I went into labor a little early. Six years later I am still anxious but that sort of is a very definite bike-riding, reading, sassing back, helpful cuddling child.
My doctor said you could knock him over with a feather. He said he never saw such a thing. He said that was the lowest beta he’d ever seen, with the slowest rise he’d ever seen that ended successfully (that’s alive and healthy in doctor speak). He said it was the lowest he’d ever heard of and he might have to write and publish something about it.
As he said, medicine is largely art still guided by miracles.
I sincerely hope I do not cause you trouble or pain by sharing this.
What I do hope is that this is an art moment.
I also hope you understand this means I understand, too. And know you can’t help but hope, want to hope, hope the hope brings a miracle but that hope can also pierce you.
Right now is what we’ve got. I think it’s okay to hang on to hope and see it as a good thing.
But I also think it’s okay to make a drive to a place that has an ultrasound machine.
Hang in there wishes, positive wishes, friendship wishes.
Julie
Using My Words
November 22nd, 2007 at 11:19 am
Good god bon. I don’t chek in for a week and I come back and all hell has broken loose. God I wish I was just there. Just to be there. I miss you and times like this it SUCKS ARSE!
November 22nd, 2007 at 11:24 am
When you first posted about the ultrasound tech’s reaction and the checking of the levels, I wanted to tell you that both my pregnancies (which are now children) started that way, with an OB telling me that it looked like a “blighted ovum” or that it didn’t look good, and then doing the series of HCG tests, but I didn’t want to give you false hope. Now it seems like it might not be so false to hope! I think my babies just get off to a slow start… maybe yours is, too. I’m hoping that’s the case!
November 22nd, 2007 at 11:33 am
Would it help to whine? I mean officially? Like to your doctor in Halifax or something? Maybe call the nurse, explain the stress all this is putting you under and have her people call your people to expedite things here(or alternately get you a pronto appointment there). Positive thoughts go out to you. I wish I could get TomKat’s machine for you.
November 22nd, 2007 at 11:45 am
Ack. This certainly is the sixth circle of something. I will be thinking of you, holding on to the bit of hope too.
November 22nd, 2007 at 12:13 pm
Wow, this sucks. Holding on to some hope with you…
November 22nd, 2007 at 12:25 pm
Drive over her, complain of cramps at the ER. I did that when I was pregnant and freaking out and unsure of what to do-got me an ultrasound right then and there.
You shouldn’t have to wait like this. Not after all you’ve been through.
November 22nd, 2007 at 1:06 pm
Bon - I don’t know what to add - just that I’ll be praying they call in 10 minutes with an opening, or that you find some other faster route to get the answer you need - and that a little hope will go a long way for in the meantime - and that you can sleep through however much waiting is yours to do. I’m so sorry you don’t have what you need right now and I’m hoping it comes your way soon.
November 22nd, 2007 at 1:16 pm
When Dave and I were still dating I got pregnant quite by accident. I was shocked and terrified and…excited. I had an early ultra sound that revealed a blighted ovum and at the time I didn’t know what it meant, and the ultra sound tech wouldn’t come out and tell me what was going on, so I was hanging on to any shred of hope I could find. I was sent for blood work, and although they told me they’d rush the results, it was two days before Christmas and I knew full well that there would be no rushing of any results.
The waiting. It was excruciating.
I feel for you. I ache for you. And, I hope for you.
November 22nd, 2007 at 1:16 pm
It is poisoned, this cup of hopefulness, but I am drinking it anyway, right now, for you. I am hopeful.
November 22nd, 2007 at 1:20 pm
thank you all, so very very much. i’m feeding like a shark over your stories of similar pregnancies which are now children…and very very tempted to head to the ER and pitch a fit until they bring me in. i actually drove there last night (i also have this horrible lingering cold which started to show symptoms of pneumonia yesterday…nice) but the parking lot was full and i just couldn’t summon the energy to sit there for hours and hours.
i’m usually a big supporter of the Canadian medical system, but the one big flaw, in terms of the suggestions of just going elsewhere for an u/s, are that in Canada you can’t really doctor shop: you have to have a referral from a local doc to be seen in a bigger centre. alas. however, my doctor here is pushing the hospital to squeeze me in, and i think my mom - my dear mom who works at the hospital but never pushes for ANYthing - is calling in some favours. so i’m hoping for a call. soon.
will keep you posted.
November 22nd, 2007 at 2:28 pm
Oh, I am prayingprayingpraying for a happy ending to this story.
November 22nd, 2007 at 2:35 pm
Of course like everyone else I am still hoping and praying that this works out for all of you but mostly I’m just hoping that you soon have an answer, one way or the other.
>
November 22nd, 2007 at 2:59 pm
I know but a shred of your anxiety, having experienced late first trimester bleeding. My midwife told me in no uncertain terms that I was miscarrying, and we sat with that and digested it for approximately 24 hours until we discovered that she was an idiot during an ultrasound.
Like I said, painful yes, but a shred of the terrible game of wait that you are being forced to play.
I’ll cling to hope right with you and your beautiful readers, whose comments of love and compassion just blow me away. Keeping you in my thoughts…
November 22nd, 2007 at 3:56 pm
Bon I don’t know what the right words are right now. I know that as I started this pregnancy with two and was unceremoniously told that one had turned out to be “nothing more than a clot,” there is simply no end to the medical community’s ability to lose complete touch with the reality of hope and anticipation.
I am an optimist, I believe in things working out, even when everything else and everyone one, might point the other way.
You are in my thoughts. I hope I’ll soon be hearing of three mind-numbingly boring hours in a waiting room with bad magazines and grit followed by relief from your limbo.
November 22nd, 2007 at 4:13 pm
I can’t believe someone won’t take pity on this situation, the angst, the hope, and get you an u/s! I’m sorry you’re going through this waiting…I’d be beside myself. Hang in there…I’m thinking of you.
November 22nd, 2007 at 4:24 pm
Oh, bon. I am sorry! The waiting. I so hope your mom calls in those favors.
And I am carrying the hope for you, with you.
November 22nd, 2007 at 6:18 pm
The fickle nature of regionalism in our health care system is overwhelming angry-making at times. We have a perinatologist with a big fancy machine here. When I was pregnant I never had a wait that was less than 90 minutes but dammit, there she was, just up the hill from my house. To think that your situation and peace of mind are at the whim of lab scheduling is making me rail with fists in the air.
November 22nd, 2007 at 6:36 pm
It’s cruel, the waiting. The hoping can be cruel in the end, too, but where would we be without it?
I’ll hope along with you, half way across the country, in a town where ultrasound machines abound, but the waits are still pitifully long.
November 22nd, 2007 at 7:06 pm
The waiting must be terrible. I send you as much strength as the internet can pull for you.
I had a big bad bleed at week 7. A big bad bleed that turned into a baby.
Hope is what you have now. And there’s nothing else to be done but feel however you need to feel to keep on breathing, to find whatever little bit of peace you can hold onto.
November 22nd, 2007 at 8:31 pm
Bon, if you were in T.O. I would take you to my clinic and insist that they ultrasound you with their fancy 3-d ultrasound. Immediately. And I am a total mouse.
I know what you mean about the healthcare system–I would pay to avoid the misery of waiting. I’m sorry. I hope you get in very soon.
November 22nd, 2007 at 10:58 pm
Hi Bon - Can’t believe what you’re going through. Dr. Bev Brodie in Stratford has a portable ultrasound in her office. She is supposed to treat “infertility” (whatever that means) but I know she and her staff would show compassion for what you’ve been through fertility-wise, if you could get a referral and an appointment. We’re thinking about you guys all the time.
November 23rd, 2007 at 2:12 am
I hate the wait.
But having tomkatie’s machine in house. I dunno. That is spooky voodoo.
crossing fingers….
November 23rd, 2007 at 2:30 am
Hi. I hate sullying this post with my response to your comment on my blog, but I cannot email back to you as I cannot find your email….
it is worth the leap beyond Travolta, who is not the strong point of the movie. And he does not try to be the strong point. The dancing and singing alone is just so much fun.
November 23rd, 2007 at 2:42 am
Sorry you didn’t get any definite answers today. I’m hoping you can get in asap for the ultrasound.
November 23rd, 2007 at 4:47 am
oof. my heart.
November 23rd, 2007 at 3:32 pm
I’m hoping that not only do you get an answer soon, but that it’s exactly the one that you want. I know nothing about the Canadian medical system, but, in my experience, there’s almost always a way to get around the rules, if you make enough of a fuss. If you’re up to it, that is.
November 23rd, 2007 at 4:30 pm
Go, Bon’s mum, go!…um yeah, and what thordora said. Hang in there Bon. This could be the stuff that miracles are made of.
Thinking of you.