Fri 28 Mar 2008
institutionalized
Posted by bon under coping stuff, pregnancy stuff
the place lurks in the dustier corners of my brain, almost like a dreamscape…a warren of banally familiar rooms and hallways examined in tedious detail over months of enforced, enclosed exposure…and yet i do not think about its innards, have never even tried to connect all its pieces and the experiences they represent into any kind of coherent whole. it is too much to try to take in. it sits there, institutional, a monolith acknowledged only at the surface, in donations at the local Dairy Queen and testimonials of happier endings from telethons and fundraising letters. from the first time we drove out from under the parkade barrier, new parents and childless all at once, this hospital has been an indelible, impossible temple of our past and our possible futures, both. our first child lived his entire life here. he died in my arms in a rocking chair nurses set out for us, a tableau wherein all but us knew their parts well. at his death, it was decreed that any future pregnancies - those that got to the twelve week mark, of course - would be monitored here, on an outpatient or inpatient basis as required. this hospital is the place we faithless hopeful turn, no matter how uncertain its promises or fraught with pain and memory, no matter how incessantly bad its food, year in, year out.
the first time i came here i was airlifted in, all urgency, to wait in isolation for weeks for a birth that turned out worse than we’d ever really believed it could. the second time i came packed, warned by my doctor at home that the next regular checkup would likely result in preventative hospital bedrest. it did. i stared at the walls for weeks on end, grappling with fear and boredom and the assaultive power of memory to overwhelm one with something so mundane as the shape of a drawer pull, the baby blue of a ratty curtain.
and so i came this Tuesday for the standard ultrasound, at the appointed time in the expected place, and still i was struck by the utter weirdness of being there and how i felt like a sad, small child, inanely proud at knowing where everything was, which doors in the Fetal Assessment Unit lead to where. the 7th floor, Fetal Assessment and bedrest ward combined, have seen more of me than some apartments i’ve rented. and were looking to see more…that ultrasound’s results were not so standard after all, and so we agreed that i would return the next morning, to stitch my weakened cervix in an effort to allow this pregnancy to reach viability.
a cerclage is only minor surgery, maybe fifteen minutes. it means two days in hospital at most. and yet the night before i was clingy, anxious, almost desperate to get things in order. some part of me expected to stay, to be removed from my life for weeks or months, held in stasis…and i felt helpless, unprepared. i have been expecting a stint in this hospital during this pregnancy, only later…just as i expected a stint for the last pregnancy, which - had all gone differently and November not brought miscarriage - would have come about now. so the place has been looming large in my expectations for months…but i was not entirely ready, not at all. the place is too much to ever be fully ready for.
i went in Wednesday morning, checked in, had blood drawn. the admitting clerk directed me to the third floor, which took me aback, because in my mental map of the place, the third floor is the NICU. Finn died there. we have been back since, to see other babies…but like the college room where you lost your virginity if you were a late bloomer like me, the place remains quite singular in my mind, a stage for that one event. i recalled, on the way up the elevator, that the convenient maze of protection my memory has put up around its unrevisited sore spots had utterly blanked the fact that he was also born on the third floor, that that’s where L&D is, too, a wing of the hospital i’d never been back to despite all the months i spent there pregnant later with O.
he was born in room 310, i saw as we rounded the corner. the nurse led me through the wing. i paused for a second in front of that room i hadn’t seen in almost three years, in front of the door, compelled to look in and yet awkward about barging in unannounced on someone else’s labour. i wanted, i think, to see if i could see some shadow of my child more clearly there, the little son i barely glimpsed at his birth; if the configuration of walls and light and machinery would trigger some gift of recall my conscious mind cannot. but i did not. i got corralled, instead, down the hall to a small utility-type holding cell with a stretcher in it, where i dolled myself up in a johnny shirt and spent the next two-and-a-half hours lolling about on the cot and left the past behind and forgot, for awhile, even to fret about the present.
the surgery went well. my doctor announced three times that it had been a really good idea to do it now rather than later, which i found oddly comforting even though, really, it’s news more dire than one would hope for. recovery was odd. they’d given me a spinal and my hips and legs were so utterly deadened that i kept reaching my hand down to my meatlike thigh and wondered why they’d entrapped me in a fat suit. my brain was convinced that my poor legs were all cramped up in frog-fashion and that i desperately needed to straighten them, even though they were actually sticking straight out in front of me and i couldn’t move a muscle in any case. my nurse was kind. the lady on the other side of the curtain had twin girls. we listened to them, all new and healthy, and the new mother lamented that she’d been told she’d have to stay three nights with them because one was small and i bit my tongue and tried to focus on the sound of the babies, telling them apart, wishing them well. her luck does not take away from mine, i whispered to my meatloaf frog-legs. we are just both here. we are just both here. now move. one foot twitched, at a bizarre angle.
they were supposed to move me originally to the seventh floor, the bedrest floor, to stay. then the sixth, where Dave & Oscar had been waiting, unbeknownst to me. then word came back that i’d be going to the one floor in the hospital that i have no association whatsoever with: the fifth floor, the nursery floor, where moms who’ve delivered normal, healthy babies go. i thought this was entertaining. but my room on the fifth floor wasn’t ready so they wheeled me back out to the third floor L&D ward.
i had forgotten the room, but i knew it, well. it’s a birthing suite, not that different from 310 three doors down where Finn was eventually born. the night i stayed in it, three years ago, was the very first night i spent in this hospital, flown in with my water broken, Dave rushing by car to make it from Charlottetown. i remember it as low-lit, with many nurses coming and going in hushed tones, checking for contractions, to see if labour had stopped. i remember trying to come to terms with what 24 weeks might really mean and whether i could comprehend what it would mean to us to have a child with serious disabilities and struggles ahead of him or her. i remember trying to comprehend the possibility of death, and mostly failing. i remember seizing, though, as best i could, on the fact that labour had stopped for the time being…and very consciously deciding that i would not let my fear overcome me, that i would love and attend to the baby within whatever might happen, that whatever time we got together, i would not turn away from. i did that, and i never regretted it. but i realized Wednesday, staring at the same walls, that it was not a decision i could ever truly make again. i am institutionalized now, broken, in a sense, no longer whole enough or naive enough to be able to summon that purity of spirit without cringing in fear of the after. i whispered an apology to the stitched-in fetus for what i wish i could give again but can’t, and waited for them to take me upstairs.
and i whispered again to my still-tingly legs, this time about the two versions of myself, there is no comparison. shit luck does not always mean shit luck. we were just both here. we were just both here.













March 28th, 2008 at 10:53 pm
Hello my dear, I get to be first. And it’s late so here I am with nothing to say other than you are loved, and phewph, and I know.
And yeah, they fed me a bologne sandwich in there once as part of my high fibre, normal, 5th-floor birth. A slice of bologne with a squirt of French’s mustard on Wonderbread. Go figure.
xoxo
March 28th, 2008 at 11:21 pm
I was also going to chime in on the food situation. After 27 hours of labour they gave me toast with margarine, a cup of lukewarm tea, and half an orange. Blargh.
I’m blathering about food because I don’t know quite what to say about the rest. Take care of you. Be well.
March 28th, 2008 at 11:26 pm
Did you read Kate’s post tonight?
I don’t know much from luck, shit or otherwise, but I do know that there is some kind of grace that has you and Kate not only in the same blogosphere at the same time but, at this moment, in the same province and practically the same city.
Thinking about you and the now stitched-in alien.
March 28th, 2008 at 11:38 pm
I’ll tell you what…I’ll feel the hope and send the love for when you can’t.
March 29th, 2008 at 12:25 am
In carrying with the food theme. After 36 hours of labor, I was starving. Six hours later, still no food. When I asked the nurse she said, “Oh, usually the new moms order delivery pizza.” And it was good.
Bon, I know you and your family have a trying road ahead. I will keep all of you in my prayers.
March 29th, 2008 at 12:44 am
thinking about you nonstop.
xo
March 29th, 2008 at 2:35 am
You are brave beyond brave. I feel so lucky to ride this star with you
March 29th, 2008 at 4:36 am
I too am thinking of you.
March 29th, 2008 at 12:20 pm
sweet girl- been living the “prepping for the worst case scenario through the best” for the past two+ weeks now- it is ridiculous. the before unimagined places your mind can go as you sit for hours questioning any twinge or feeling.
so glad the procedure went well, hope that you get to go home for as long as possible and do bedrest on your couch like me, just down the coast, keeping our cervixes in check with stern talking-to’s and plenty of milk and water and chocolate. peace for your heart, bon.
March 29th, 2008 at 12:39 pm
It’s completely unfair that you were both just there. That you were there. That this luck thing needs spread around a bit better, imo, like I’m sure the mustard does on your ass-little-institutional sandwich.
Thinking of you non-stop, Bon. Hope you feel those legs soon.
March 29th, 2008 at 12:52 pm
I’d second that Kate and raise you a Mad.
And as much as I wish I had something else more profound or knowing to say, I simply do not. Words escape moments like these.
March 29th, 2008 at 2:02 pm
I read this post earlier but didn’t have time to comment. The ending has been echoing in my head all morning.
Those who came before me said it all. Take care of you.
March 29th, 2008 at 2:55 pm
Good God almighty, your words are so hauntingly beautiful. You are on my mind, and I’m sending whatever goodness I can out into the air, and hopefully it can find its way to you.
March 29th, 2008 at 3:32 pm
THose cold rooms….they never hold the mysteries we think or hope they’ll hold. That smell is what always gets me.
You will be fine.
March 29th, 2008 at 3:39 pm
Oh, how I wish I could just scoop you up in my arms, Bon, and chase it all away.
March 29th, 2008 at 7:09 pm
I really, truly hope you are feeling the well wishes and high hopes you readers are sending your (and Dave’s) way. Your tenacity and courage in this quest is deserving of good results. Peace.
March 29th, 2008 at 8:33 pm
I keep coming better, hoping that MAGICALLY my words will have improved. But they won’t, so I’ll just akwardly send you my best, best wishes and also remember my own long, looooong bedrests, resulting in my two beautiful youngest children.
Wishing the same for you with all my might.
March 30th, 2008 at 2:41 am
What everyone else has said… I cannot add anything significant but wanted to tell you I am thinking, hoping and praying. Sending warm fuzzies across the country to you & yours.
March 30th, 2008 at 2:42 am
Holy smokes, this took my breath away. Your amazing writing made me feel like I was right there with you in the hospital. I’m thinking of you tonight, hoping that you can feel all of my good wishes.
March 30th, 2008 at 1:40 pm
I have you in my thoughts and prayers Bon.
March 30th, 2008 at 7:04 pm
Hang in there - you’ve got a great support network.
March 30th, 2008 at 8:34 pm
i have nothing profound or helpful here…just know i am thinking of you…
April 1st, 2008 at 10:05 pm
Something happened to me between 12 when I couldn’t have even imagined giving it all again, and 16 when the ice started breaking. And now, I don’t know if I have it all, but I know what I have I would give.
There is no comparison, and there should be no guilt. But this may not be the final verdict yet.
And though I am dreadfully late to this, you know, don’t you, that my most fervent wish for you is that this question remains theoretical, that you are never ever tested this way again? Nor any of us, of course.
April 2nd, 2008 at 12:39 am
At this point, I think I’d rather be institutionalized than sensitized. It’s just too hard otherwise. Hope is dangerous.