Sun 10 Jan 2010
do not go gentle
Posted by bon under coping stuff
[45] Comments
when my grandmother was in her last years, and failing, she lost everything she cared about.
except my mother and i, who sat vigil at her bedside as her entire world narrowed to those two iron rails. but there was only so much we could do to stem the tide of what slipped from her, day in, day out.
first, the house, the house she’d been born in nearly a century before. the driver’s license she’d gotten only at 68. her card nights. bowling. a few years later, the apartment, independence itself. her marriage bed, her pots and pans, a lifetime of odds and ends collected over 90 years. no more fridge of her own, only a tray brought to a room in a “home”; a tray like all the other trays, a room like all the other rooms. then the health to go for drives and complete her crossword puzzles and enjoy All My Children in the afternoons. the pain began; it wasted her.
through all of it, seven interminable years of relentless, incremental loss, she struggled with despair and shame at her increasing inability to do. when you are ninety and have outlived your spouse by decades and watched your friends weaken and drop around you, your independence and strength become fierce components of who you believe yourself to be.
i suspect the rest, the whoever you might have been in the long life before, has to be left behind in order to survive the foisted cruelties and indignities of old age. nobody alive remembers that person anyway. and eventually, neither do you.
and if you are a relative of mine, it appears that at the centre of your fierce independence is the belief that you are tough enough to simply die in your sleep when you’re good and ready.
my grandmother didn’t get to do that. in the last year of her life, she lay confined to a series of nursing home and hospital beds, little bird bones poking through her skin. i watched her pull herself present through hazes of morphine to meet my gaze. she had blue eyes. in their reflection, i was always beautiful.
let me die, she would whisper. i’m done.
i love you, i would say in response, irrelevant and yet all i had to give. i refused to look away. i’m so sorry.
she was ashamed of being what she thought was a burden. i was ashamed at my powerlessness, my lack of courage to do for her what she could not do for herself.
seven years, it took.
my grandfather, from the other side of my family, turned ninety last month. his wife died nearly 22 years ago; he has lived since in the house they built together in the 1960s. every corner of it remains a testament to the glorious sleekness of the Bungalow Era. moss-green shag blends living room and family room. the space-age proto-microwave in the kitchen wall sits lonely, waiting for an opportunity to unleash the wrath of its radiation. he has not cooked since she died. not using that microwave may be the secret of his longevity.
he was a spy in WWII, a British Secret Intelligence Service agent who worked out of New York and Camp X, the commando training centre in Ontario from which Ian Fleming would later cobble together the mythology of Agent 007. in the middle of the war, he married an 18 year old girl from the farm down the road. she had barely been to the metropolis that is Charlottetown; three weeks after their wedding she found herself in an apartment in New York City. he was called away on a mission – Top Secret – the morning after she arrived. he could not tell her a thing about where he was going – she stayed on alone, in the city that never sleeps. it was six full weeks before he returned.
there has never been anyone else for him.
the war ended. my father was born at Camp X in 1947, while the Cold War took shape. in 1949, the British closed Camp X and burned all the records, and my grandfather turned down the offer to join the fledgling CIA . his wife was done roaming and wanted to go home. he and my grandmother moved back to PEI, bought a little brick house for $6000, raised four kids. he worked as a mechanic from that day until last week. yep, last week. at ninety, he was still going into the mechanic shop a few mornings a week. he likes his routine, my grandfather. he likes to be useful. he has no coping mechanisms for any other state of being.
my grandfather had a heart attack on Friday.
it was a reasonable-sized Cardiac Event, as evidenced by the levels of troponin in his blood yesterday indicating muscle death. he wasn’t in much pain, but his breath short and fast, and his colour gray. he spent the night in hospital. i was there when the doctor came the next day at noon, saying “Lovenox and a few days and we’ll see and you can probably go home then.”
my grandfather heard only the “probably”. and by the time i returned after supper he was high-tailing it down the hall, hell-bent for leather on going home. NOW. against medical advice. with no chance of continuing the Lovenox once he rendered himself an outpatient.
my father arrived. a close family friend, who’s also a nurse. the three of us tried for an hour, together and separately. i made him look me in the eye, said, i love you. i’m worried about you. i know you’re afraid that this is your only way to control the situation. but i’m afraid this may mean you don’t heal enough to STAY independent.
he looked at me like a hunted animal.
we brought him home. and kept him home last night. he couldn’t breathe, he was panicky, having to struggle his way out to the cold air to catch his breath five times in the first hour. in his socks, in the snow. he wouldn’t let me put his boots on. he wouldn’t let me bring him a blanket. he was agitated, shocky, a clear candidate for oxygen and hospitalization and possibly some form of sedation.
i did not let him see the tears in my eyes.
i don’t know if the choice he made, in his own mind, was the choice to go home to die, or the flight reaction of a terrified human being who wants things desperately to revert to normal. his face told me that either way, for him, it was a zero-sum game. there would be no argument. none of us have power of attorney, and i doubt one of us who loves him would begrudge him the end of his own choosing, would that we could only grant it.
he picked his hill to die on, and we brought him home.
but i learned, with my grandmother. life is not always so benevolent, nor ends so final. they can trail out, cutting you down body and soul with a thousand bloody, cruel little scratches. that is what i fear for this man who cannot stand to sit idle, whose heart – damage or not – is big and free, loyal as a labrador retriever.
he is home tonight, breathing a little better. the cigars sit, rejected. he had a little food. he is trying. and i sat beside him today and believed, for a few minutes, that this is not the end, maybe only the beginning of the end. i hope it’s true. i am not ready, never ready.
but whenever that good night does come, i hope it falls swiftly for him. the losses all at once, clean and silent.
ours, not his.
45 Responses to “ do not go gentle ”
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Trackback from cribchronicles (Bonnie Stewart)
January 10th, 2010 at 11:13 pm
dying’s a part of living, yep. it’s the long inbetween that’s hard. [link to post] -
Trackback from jen_mcfadden (jennifer mcfadden)
January 10th, 2010 at 11:34 pm
RT @cribchronicles: dying’s a part of living, yep. it’s the long inbetween that’s hard. [link to post] … -
Trackback from concreteorange (Frank Streicher)
January 11th, 2010 at 12:17 am
via @cribchronicles My dear, dear followers. Read this or be damned [link to post] . Bloggers: read and learn from a master. -
Trackback from Duendito (Bob Sutherby)
January 11th, 2010 at 6:15 am
RT @concreteorange: via @cribchronicles My dear, dear followers. Read this or be damned [link to post] . Bloggers: read and learn fr … -
Trackback from BaltimoreGal (BaltimoreGal)
January 11th, 2010 at 11:17 am
Not easy to read, but if you’ve lost a grandparent, or are yet to, you should. cribchronicles.com [link to post]





January 10th, 2010 at 11:19 pm
I’m sorry you’re going through this, but glad that you have the ability to see dignity in death — the hardest, most conflicted place to be, but also the most honorable.
I watched All My Children with my Grandmother. When I went to college, she cut out the soap updates each day in the paper and sent them to me twice a week. I still watch it enough to keep up a bit; it’s a legacy. And now it makes me feel a bit close to your Grandma, too. Like we’ll have a lot to talk about someday over heavenly ambrosia and tea.
January 10th, 2010 at 11:26 pm
That you are there for him, home or not, swift or slow, must mean the world to him.
This sh*t is hard. I’m sorry.
January 10th, 2010 at 11:40 pm
Such a tough, tough place to be for such a strong man, and all those who love him. I’m so sorry that things have unfolded this way. May you all know peace in the midst of this.
January 10th, 2010 at 11:41 pm
sigh.
we can control so much these days. so the loss of control that comes at the end of life must be particularly hard to bear.
thinking of your family tonight.
xox
January 10th, 2010 at 11:43 pm
Oh Bon. Sitting beside you today. xo
January 11th, 2010 at 12:02 am
TO be there, to feed you all homemade marshmallows and listen to his stories.
Hugs.
January 11th, 2010 at 12:06 am
When I read over his life story, and his character, it isn’t really that surprising that he is so stubborn and independent, and wanting to do things his way. I’m sure it doesn’t surprise you, either… as hard as it seems.
January 11th, 2010 at 12:08 am
oh Bon. It’s hard no matter what, huh.
Add me to the club of “watching AMC with Grandma,” too.
January 11th, 2010 at 1:02 am
First off, what a fantastic blog entry. It’s really a shame that such a mind will be sacrificed to the mediocrity that is academia. A terrible waste.
Second, if your gramps pulls through , then you must introduce me to him. I am not sure if you ever told me about his camp X experience but if you did , I was an ass for not jumping at the chance to meet him.
Finally, with this entry you have single handedly shattered the myth of the gentle death built up through film and literature (thanks Tolstoy). From your description it appears that your gramps is not at all ready for death at 90. Shit. I thought that acceptance would come naturally. Now,more fervently then ever, I hope for that stray bullet in a decade or two.
It is a shame, really, that we cannot designate a professional to help us die quickly, efficiently and on our own terms.
January 11th, 2010 at 2:23 am
i don’t know you and you don’t know me, but i follow your blog and enjoy your beautiful, eloquent writing. i’ll be thinking of you and your family…
two of my three grandparents who have passed away went suddenly, in a sense. my grandpa petered out slowly, like a wind-up toy winding down, from congestive heart failure, till he went, suddenly, on the operating table during an operation that would have improved his quality of life. like your grandpa, he valued his quality of life as highly as life itself. but he lived at home and independently (with my grandma) until he was admitted for pre-op the day before he died. he and your grandpa share that spirit. bless.
January 11th, 2010 at 5:19 am
How can something so sad be so beautiful?
The story of your family carves out a heart on the page. Though this is not at all easy, I hope you can also sense the privilege it is to be able to help him with this last passage. Even though it doesn’t feel like he wants your help.
Thoughts and prayer-like things are coming your way from a far away stranger who is stunned by beauty of your writing.
January 11th, 2010 at 6:08 am
Great article. I have been through the loss of both my parents, who each in turn were taken much too early (both 65, in different decades). My wife is currently enduring the ordeal of Parkinson’s Disease at the untimely age of 35 she was diagnosed. She is now 43 and already experiencing some of the loss that others do in their twilight years. We are taking things day by day and keeping our fingers crossed that a cure or significant treatment will come along so that she can stop being a prisoner in her own body.
Regards,
Bob S.
January 11th, 2010 at 7:55 am
(((hugs)))
January 11th, 2010 at 8:18 am
Oh Bon. All of this. He reminds me of my granddad, so fiercly independent, and of my father-in-law, so determined to die peacefully at home.
There is no easy solution here. You know that I hope and pray only for peace, for all of you.
We are with you.
January 11th, 2010 at 11:10 am
I have been through this with a number of great-aunts and my great-uncle, all of whom raised my mother. Each time it tears you open a little. I don’t know that there is a good death, but there are better ones. I know you are helping to make a better one so bless you for that.
January 11th, 2010 at 11:22 am
I’m sorry. I’m moved by the love for, and the dignity you’ve afforded both your grandmother and now your grandfather. The photograph makes me smile and well up. Difficult not to think about my own losses. My thoughts are with you.
January 11th, 2010 at 1:27 pm
I am so sorry.
January 11th, 2010 at 2:00 pm
Oh, hon – I hope he gets everything he wants. This dying thing is hard. Thinking of you – and him.
January 11th, 2010 at 2:36 pm
Such a tough situation. My grandmother will be 80 this year, and it pains me to watch her. When I was a kid, so was the adult – she ruled the house. But now, she can barely walk up her front stairs. And she’ll repeat the same story 4 times in one conversation.
It stinks, because there is nothing we can do to help. We just have to sit and watch her deteriorate.
January 11th, 2010 at 9:15 pm
Death is a funny thing, isn’t it? The last taboo, something we dread and fight and protest — but finally, it brings peace.
I am learning this much later than you. I’m glad your grandmother had you, all those seven long years.
January 11th, 2010 at 9:21 pm
“he is home tonight, breathing a little better. the cigars sit, rejected. he had a little food. he is trying. and i sat beside him today and believed, for a few minutes, that this is not the end, maybe only the beginning of the end. i hope it’s true. i am not ready, never ready.
but whenever that good night does come, i hope it falls swiftly for him. the losses all at once, clean and silent.
ours, not his.”
tears streaming down my face, bon. you and i are soul sisters once more on this icy coast. nine years ago last night i sat with my momwhoraisedme and told her it was ok for her to go, and she did. but i am not yet ready for him to go, and in many ways i am so much more stressed by the reality of his illness and care than i ever was with hers.
we’ll keep hoping and praying for the best possible life for these men of ours, and dignity and peace and no fear at all when the end comes. xo.
January 11th, 2010 at 9:32 pm
death IS a funny thing, Susan. and not something i believe we can make good decisions about for others. but yes, sometimes, it brings peace. and nonetheless leaves a huge hole in the fabric of those who love us.
i think our society does a fine job of valuing life, and life – as you well know – is worth valuing, worth fighting for. but i wish sometimes we had better language for discussing the fact that all of us will inevitably die and there are points at or after which life may be less than a blessing. and that, conversely, we do not need to be active and useful to have a life that is worthy and beloved.
we have a culture that fetishizes life, but sometimes doesn’t do a very good job of valuing it, in all its complexities.
you guys make me feel less lonely.
January 11th, 2010 at 10:49 pm
You. Amaze. Me.
You always have.
January 11th, 2010 at 11:05 pm
Your writing is always so stunning. I wish for him the swiftness she was denied.
January 11th, 2010 at 11:16 pm
How hard for you. How hard for him. My father dreaded having a paralysing stroke, as his father had had. He kept a stash of sleeping pills in his bureau and it was clear that if he fell into a similar illness, he wanted me to give them to him so that he could die. I do not know whether I would have had the guts; as it happened he drifted to sleep watching a baseball game and never woke up, at 85, still driving and looking after himself and his sister. I was so grateful.
He is a brave man; he deserves a caring granddaughter like you. And you deserve him. May he make the end he desires.
January 11th, 2010 at 11:52 pm
i do not talk about my work on my blog. but three days a week i go to the homes of people like your grandfather. some are healing, some are passing, some are stubborn, some scare the shit out of me. but they are all beautiful in some way, struggling to hold, sometimes hold onto things that they do not even recall.
i never worked in a skilled nursing facility as i know it would break me. it breaks them, you know? working in people’s homes is better but no less hard.
these past few weeks i have seen folks who were fine yesterday, but now cannot quite make it across their shabby but ordered trailer to get a bowl of cereal. i have seen another who was wonderful and did not feel 95 until she tripped and fell and broke her hip. today she looked at me bewildered and told me just now, she feels 95 and she does not like it. i want them to be okay, i want them to have what they need, i want them to have family like you, like me.
he is where he wants to be, and for him, i hope he can stay there. and feel like himself and have time with you and yours. sending my thoughts and prayers and him. give him a hug for me, okay?
January 12th, 2010 at 3:40 am
I came to listen, to hear about your grandfather, (so glad you posted this picture – it speaks volumes. is a delight.)but found I had not yet read Twelfth Night. Now I am brimming with tears, and far less coherent that I thought I was prepared to be.
(About that: Of course you howled. And thank goodness you found the moose. And yes, these rituals are how we find our way.)
This is a beautiful testament to the spirit with which your grandfather has lived, and with which he is choosing to face dying. I think you did well by him, are doing well by him. To be stripped of one’s dignity in the midst of losses of this magnitude would surely be the cruelest blow to a man so vibrant. A man who still wants to fight, even if it is in his socks in the snow.
Perhaps then, he must be accorded that – a choice, a voice as long as he has one and if it means it will be weaker, or silenced sooner, then so be it.
So easy to say. I know.
My grandmother, 94 & living independently & for whom I am very much responsible, often tells me she doesn’t know why she is still alive. We joke about the shotgun, the pillow, I tell her to “make it a doozy Grannie”. And yet, she fears death. Is not ready to die. So, she is not going gentle. But how can I to tell her “now. now you must go into a rest home. now. see? you have fallen and so, must be wrapped in swaddling and give up your precious possessions, leave your home and go where you can be watched.” I cannot. I would be killing the part of her that still finds pleasure in being here.
Oh Bon. There are no easy answers. I wish him the dignity he deserves. And you some grace.
January 12th, 2010 at 11:09 am
I don’t know what to say. The beauty and clarity of the words you wrote to describe what sometimes happens during aging are shocking and thought provoking and food for thought. I’m thinking of my grandparents – long gone; and my parents who must be dealing with these thoughts on a daily basis; and me who wonders at this happening.
Thank you for this post. I pray that whatever happens, your grandpa will have the grace to accept it and that he will know your love.
January 12th, 2010 at 12:59 pm
Ooof. Bon.
This is so so lovely. I hope the best things for your grandfather and your family.
I can’t yet bring myself to write about my grandparents very much. (I mentioned my grandmother in November, but she is still alive and well.)
But my word for this year is Endeavor.
I am endlessly inspired by your truth, the courage it takes to get to a place where you say what *is*. I endeavor to speak my truth.
January 12th, 2010 at 4:15 pm
Dear Bonnie,
How is your grandfather today? How are you doing? When a crisis like this drops into the middle of our “full to the brim” lives, it is overwhelming. Take care of yourself and accept the help of strangers. Each kindness will bring its own touch of grace.
Last year when my Dad (at 86) lay in a coma in the hospital, two angels came to visit. They were flesh and blood angels (Ron and Stephanie) who came to sit with my husband and I and with Dad. They listened, shared their stories of vigils and grief. They prayed. Then they told us to get away from the hospital to have supper at their restaurant (their treat). The memory of the kindness and care they showed us that day continue to comfort and heal my sorrow.
May you discover some angels today.
Love,
Ruth
January 13th, 2010 at 1:01 am
I’m thinking of you and your grandfather. This was achingly beautiful. I say that to you so often. I have a grandmother lying between those rails, wanting it all to be over. She lit up, really and truly, for the two days that I brought my baby boy to visit and I break a little every day that she’s 2000 miles away, laying in that bed and we are here not able to spend her last days with her. It’s so hard. Families are so scattered sometimes.
January 13th, 2010 at 4:27 pm
So difficult. I’m sorry, Bon.
January 13th, 2010 at 4:54 pm
I wish you peace and I wish him an easy go of it when he is ready. May he find his heart and you hold yours tightly…
January 14th, 2010 at 12:18 am
Lingering can be such a hard and painful thing. Sending love to you and your amazing grandfather, and wishing this wasn’t so terribly hard.
January 14th, 2010 at 10:20 am
Sending love to you and your family, Bon. Thinking of you.
January 15th, 2010 at 11:05 pm
I get it. All of it, truly. Beautifully written.
January 17th, 2010 at 9:31 pm
This is so tough. So very hard. I have been where you are. Sending much love to you and your beautiful grandfather.
January 21st, 2010 at 1:28 pm
I never understand how you write so beautifully and lucidly about the saddest,and impart nobility in it all. Love to you, Bon. xo
January 22nd, 2010 at 9:04 pm
Oh Bon! This is so lovely. So raw and so emotional and just plain beautiful. Thank you.
January 27th, 2010 at 8:35 pm
A friend recommended this article to me and I heard a million voices in yours. How heartbreaking to see our elders slipping away.
Someone I know in the nursing profession told me that many of her patients were already relating views of loved ones as they passed. It’s good to know that if we can’t keep them that they are passing into a loving place.