Fri 3 Sep 2010
spinal tap, part the 2nd: don’t take the brown acid
Posted by bon under pondering stuff, stuff stuff
[30] Comments
part one is here.
so, my two day Ph.D orientation was September 1st and 2nd. yesterday. the day before.
i was not there.
i’d been joking for awhile about the campus tour part of the orientation, since the campus is about as big as a minute and i’ve worked there for five years, in four different buildings. but i was still looking forward to it. it’s the first Ph.D program this faculty has ever run: there are only four of us entering, and we’d spend the two days with pretty much the full faculty contingent and get a lot of the research and funding questions i’ve had since the spring finally answered. this was the fullest, most concerted access we’d have to each other just as people, stating interests, exploring options, before the race of the year got underway.
but last Friday i had a headache. Saturday, i woke up with a sore, sore throat and an overall sense of ick. Sunday, i could barely even GET up. it was like a flu on a scale i’d never had: full body aches and chills and sweats like a roller coaster. i felt 107,and a weak 107 at that . Monday, vomiting started, and i could barely swallow. Dave took me to the ER. doc said strep: i got an IV and a couple litres of fluid and a prescription for Amoxil. went home, looking forward to getting better right quick, like a bunny. because i had orientation.
instead, Tuesday morning my throat was more raw than ever and i cried each time my body spasmed into swallowing. every drop i choked down i brought back up. but i got the Amoxil down with Gravol and they stayed and i crawled into bed and waited for relief.
instead, something crawled behind my eyes.
if you have ever taken hallucinogens in your misspent youth, you will notice, i’ve heard (ahem), that there is a point at which you think these goddam things aren’t going to work. and just as you are about to give up on the excitement you’ve, say, paid good money for or crawled at dawn all over a good golf course to pick, there comes a slight crawling, trailing motion behind your eyes and you realize the Tilt-A-Whirl has just started up and you’re locked in and there is – quite literally – nothing to do but go along for the ride for the next, oh, six or eight hours.
this felt like that. which when you have a 103 fever and can’t swallow and have long left silly college experimentations behind and have An Orientation Tomorrow to get better for, is not exactly the feeling you are looking for, whatever thrills it may have conjured in the past.
i lay in the bed wondering if i was just being silly. i opened my eyes, looked around my room, nodded, and closed them again. the exact imprint of my cat, who stood staring down at me from the side of bed, popped out in white against the dark curtain of my eyelids. then the sounds started, my ears like bizarre amplification instruments out of Dr. Suess’ own torture chamber. i could hear in 3D. i could hear conversations across town. i could hear my throat, my ragged breathing.
fuck.
i carefully got up, dressed my shaking body, put the pills in my purse, and called Dave. by the time he got home i was hiding under a pillow on the couch. by the time we got to the packed ER, for the second time in less than fifteen hours, i was near feral. we didn’t wait five hours that time. i was in a lovely private ER room in minutes, courtesy of myapparently perfect mimicry of a total nutcase.
they thought i had meningitis, swelling of the brain. nobody seemed interested in my theory that i was being poisoned. possibly because i was also adamant that if they made me take my sweater off – it was a swelterish 30 degrees out – i’d drown.
i came back to myself almost exactly four hours in, about 1 pm. i remembered the events of the previous few hours, but as if through a prism. i felt wrung like a wet rag. they took more blood than i thought i possessed. a poor student nurse was the first to try, shades of the night before school twenty-four years ago, but she might as well have stabbed me with a fork and i screamed and they sent in the elder LPN instead, the one who could thread needles like butter. i babbled incoherently at her, not because i was still delusional, but because i was so damn grateful the student had stopped.
twelve holes in my arms to add to the two from the night before. i have tracks like Keith Richards in 1968.
then, after the IV took hold and the fever broke and i lay spent in the pool of my own sweat, a spinal tap. or actually four, because the very nice doctor kept saying, in a curious flat tone, i can’t seem to find any cerebrospinal fluid.
it is a strange thing, to be bent in half, mostly naked and sick, over a hospital bedside tray with the most vulnerable corners of your spine stretched like a cat to a man you’ve never met before and have him say such a thing about your white little back. it felt oddly my fault, as if i’d thrown a party and failed to ensure my guests had drinks. fluids are the hostess’ responsibility. and that silly feminine guilt was easier than acknowledging the fear that raced through the pathways of my brain, recently fried like eggs. i had a spinal tap once before, twenty years ago. i’ve had three epidurals. but in none of them has anyone ever said, i can’t seem to get this right.
he did, on the fourth try, leaving me mercifully unparalyzed though with the killer cerebrospinal headache that still haunts me to this moment. while he waited for the fluid to drain a nurse strolled in and announced Bed Twenty-two? She has a blood alcohol level of ninety three.
there was clucking, impressed though not unkind, from the faceless sea of medical professionals circled around my C-curved body. out of nowhere, afraid i would laugh and paralyze myself if i did not get the thought out, i muttered, I’ve had drinks that had alcohol levels lower than that. they skipped a beat, because they had all, i think, forgotten me as more than a back, an exposed lumbar. then they laughed, again kindly, and the doctor spoke wearily to the nurse and made sure that the woman would get all the treatment they could give, even though she was apparently uninsured for some of the extras. or something. it wasn’t clear, nor was it my business. and yet in that moment, i felt the doctor’s tired, capable, patient hands on my back, and i felt more human than i had in hours, or would again until i got home.
our local ER is new, quite lovely if understaffed, and full of state-of-the-art private rooms. so i was rolled, all taped up to multiple monitors like a neonate, to one of these glamourous holding tanks until late late, just when i’d decided to sleep, a cheery nurse named Kathy came for me and brought me inexplicably to pediatrics. i realized later it was the only private room available in the hospital. they were keeping me in isolation until the meningitis tests came back.
rooms with Disney stickers are lonely when you miss your kids.
i felt better the next morning – my throat less raw after the fourth bag of IV fluids – and my fever came under control and by 4 pm when they came in to say that it was definitively strep and not meningitis, i was feeling pretty good.
then they said, here’s your Amoxil.
i mentioned that the nice ER doctor had said i wouldn’t be having any more of that. the whole “thing” the day before might have been a reaction.
they stared blankly at me, these particular nurses in their teddy bear-print shirts. they had just come on shift: i had never seen them before. do you have a rash? they said. Amoxil reactions are rashes, one clarified, with an abrupt finality. they said the doc on call had ordered it, for strep. she emphasized the last part slowly, an equation, like i might be a little stupid.
they shook it at me. my mother was there, both of us uncertain. i understood there were no chinks for my words to get a toehold on in this particular version of the system. no way out but through.
i took it.
twenty minutes later, i asked my mother to kindly put out the bathroom light behind her, as the sight of it was suddenly searing my eyes. then the crawling started. goody.
this second time i understood what was happening, and was neither feverish nor dehydrated nor in debilitating pain. and so, with my mother patient beside me and then, team switch, with Dave, i rode it out again, watching the big black hospital clock on the wall. with my eyes open it crept around, unruly. with my eyes closed, only the stark white circle of it stood out, imprinted against the back of my lids.
four hours, i told myself. four hours.
lucky me. i have a rare neurological allergy to amoxicillin, my file now states.
the night nurse, in the absence of a rash, still eyed my nightside table suspicously and treated me like a juvenile delinquent all night long. the one who came on the next morning couldn’t have been more different, more warm, more empathetic. people. timing. random luck.
and so i walked out of the hospital yesterday morning, shaky and weak but slowly recovering from the fever and the strep, with a prescription for an unrelated penicillin and a sense of having been to another land, one out of time and body.
which i suppose, in the end, is as good an orientation for going back to college as i could have had. whatever i missed at the actual deal, i think they’ll kindly avail me of anyway. but the strange heart of darkness that can come – even for a 38 year old woman in a pediatric ward, attended by her mother – hell, that kind of exploration i’d forgotten.
i’d forgotten that reality isn’t truly the same for us all. i’d forgotten that being treated as rational, knowledgeable, human, is a privilege, not an everyday occurrence in all circumstances, something that one can be stripped of in a heartbeat. i’d forgotten that institutional systems are not always inherently benevolent, no matter how helpful nor how needed in a given circumstance. i had forgotten, from years of good luck and good health and the taking for granted that comes when one has all the privileges of race and class and education, what it is like to be vulnerable to other people’s misconceptions about your particular circumstances, what it is like to be vulnerable to the human frailty of power, even if that power ostensibly means well and has teddy bears on its shirt.
i could have taken an entire Ph.D and not learned something so valuable, so human.
***
for all those of you who kindly asked…i’m doing a lot better. throat decent, fever down, food slowly making its way back to my world. as soon as the Old Testament prophet behind my left eye stops smiting it with the lightning bolt that is my cerebro-spinal take-home present from the spinal tap three days ago, i’ll be grand. the headache still gets worse every day. i am hoping today is its pinnacle. tomorrow, we have a hurricane coming.
30 Responses to “ spinal tap, part the 2nd: don’t take the brown acid ”
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Trackback from whymommy (Susan N)
September 4th, 2010 at 1:55 pm
That @bonstewart sure can weave a tale. An even bigger one than I thought I heard here, on twitter: [link to post]




September 3rd, 2010 at 12:00 pm
Yikes! What an ordeal! Get well soon.
September 3rd, 2010 at 12:04 pm
I am glad that you are home and glad that you are recovering. Do they have you on painkillers for the spinal headache thingy? After one of my epidurals I had cluster migraines for a while, but a doctor finally fixed them.
For months after my hospital stay, I felt fragile, paper-thin. It passed and now I only remember those words.
September 3rd, 2010 at 12:12 pm
What an ordeal! Sounds quite frightening, I’m so glad you’re ok!
September 3rd, 2010 at 12:42 pm
Yipes. Some ordeal. There’s a whole medical game with a title something like – ‘Whom do you trust, the doctor or the nurse’. And the answer varies. I go to a ‘Community Health Centre’ that has both docs and nurse practioners and primary care nurses and I see the nurses six times out of seven. But I clearly remember a doc and np having a royal set to behind my (very messed up) back about whether I had shingles or not. Makes you feel like a non-person.
I wish you a fast and thorough recovery and a miss by whatever his name is tropical storm.
And I am completely impressed that you can write like that with a massive headache.
What program are you taking?
September 3rd, 2010 at 12:55 pm
Good lord what an ordeal.
You write beautifully about your experiences, and the privileges we so often have. It is shocking to be stripped of them.
Much love to you. And I hope you get some time with your colleagues and mentors soon. That’s the best part of grad school by far.
September 3rd, 2010 at 12:56 pm
i will never forget the sadistic nurse i had one night after surgery on my broken leg. post-op they’d swathed the leg in all kinds of bandages, and at around 9pm i started feeling intense nerve-like pain in my heel. i spoke up. at 3am i hadn’t yet slept and was sobbing from 6 hours of unrelenting pain, at which point the nurse dressed me down: “you can’t feel pain there, and i don’t want to wake the doctor for nothing.”
she finally called the doctor when i was near-hysterical, at 4am, and he said to her, “just unwrap the bandage in that area.”
instant, blessed relief. a corner of the bandage had been digging into my heel.
i never received an apology. and i’ve never felt so much like a recalcitrant child — or psychiatric inpatient — as i did that night.
September 3rd, 2010 at 12:58 pm
and I am SO glad that you’re OK.
September 3rd, 2010 at 1:17 pm
Oh, Bon. How awful. Oy. I’m glad you’re home and mending. They didn’t offer you a blood patch for the spinal headache?
(I hope we didn’t visit pestilence upon you, but we’re not sick.)
September 3rd, 2010 at 1:21 pm
Magpie lovely, i don’t think if you’re healthy that you could have the been the pestilence bearer. you’d notice if you had what i have. :)
and what is a blood patch?!?
Mary, the Ph.D is in education. i’m excited. Dave sweetly came home to check on me midmorning today with two different nice binders for me to choose from, because he knew i had nothing new for school.
i am such a big kid. no wonder they put me in pediatrics!
September 3rd, 2010 at 1:31 pm
Just completely gaping at what you’ve been through. Good lord. You need a drink. *I* need a drink just after reading it. So glad you’re back at home and not seeing any more stars and tapdancing dragons and stuff. xo
September 3rd, 2010 at 1:31 pm
oh, and i should clarify…the ER staff (even the poor little fork-stabbing student nurse) and the pediatrics nurses were all extraordinarily kind to me, particularly the head nurse in peds, who is amazing. the one exception was the night nurse i happened to have after my second Amoxil reaction, who i suppose simply was unable to accept my version of events. she was not unkind, per se. just plain suspicious. she opened my drawer to find the extra strength Tylenol and Amoxil Dave & i had come in with, on Tuesday, the ones another nurse had put there for me, and exclaimed “you’ve got PILLS in here!!” as if she’d just found the stash of quaaludes and dexies i was dealing.
but wow, being treated like that made me feel small.
Sarah, your story is just heartbreaking – a grand-scale version of that kind of dismissal. it really is a shock, isn’t it? and yet people spend their whole lives on that kind of defensive, on the basis of how or where they live or the colour of their skin, the accent they speak with, the last name they carry in a small town.
remembering may help me not perpetuate it, at least.
September 3rd, 2010 at 1:41 pm
Gosh, Bon. The kind of adventure one never hopes to have. My mother had a spinal headache after my brother was born. I hope your trials ends, and soon.
September 3rd, 2010 at 3:16 pm
Glad you’re ok and I hope the headache resolves itself soon.
September 3rd, 2010 at 3:34 pm
Holy cr@p!!! What an ordeal. You have my sympathy. I’ve only ever had to deal with seasonal allergies on & off over the past 25 years (tree & grass pollen), but over the last year or two, I’ve suddenly developed allergies to a whole bunch of foods. Tomatos seem to be the primary culprit, but peppers (which are related) have also become iffy for me, as well as almonds & other foods that I haven’t quite been able to determine where the problem was. It’s extremely disconcerting, especially to have this happen when you’re pushing 50… you hear about kids developing allergies to peanuts & such, but when you’re in your late 40s?? And to tomatos, of all things?? (especially when married to an Italian??)
Hope you are feeling better soon. And that Earl is more of a pussycat than a lion.
September 3rd, 2010 at 9:05 pm
apparently, so says a kind reader who emailed, the blood patch is my own blood injected back into my spinal column. because right now my brain is sagging, missing the little bit he took for the tap, and experiencing that as pain. neat.
luckily, i’ve discovered that if i lie down i feel a lot better. the reason each day has hurt more, is that i’ve been up more. so long as i am slothlike, i am okay. slothlike=good. :)
September 3rd, 2010 at 11:41 pm
Bon, that’s terrible. How awful. I hope you are feeling better.
September 4th, 2010 at 7:46 am
Just emerging from my normal lurking position to wish you a speedy recovery.
September 4th, 2010 at 12:12 pm
How awful – you poor thing. Keep lying down. Keep practising your sloth impression.
September 4th, 2010 at 1:57 pm
No. Just no. You should not have been treated like that.
The number-one thing to bring with you to the hospital is always someone to put their foot down on your behalf. To say no. To insist on seeing the doctor, or the head nurse, or the whoever, to explain YOUR circumstances and to ask for clarification.
I almost died in the ER last November because of a nurse’s insistence that she knew better than I — and indeed, it was only my husband’s good sense that helped bring me back from a 40/20 BP and pulse under 40.
If I were closer, I’d meet you there next time. I have that deal with my friends here, and I’m not afraid to use it.
Geez. Keep resting, and getting stronger. School will be there when you’re ready.
September 4th, 2010 at 2:07 pm
Wow. My kids have an affinity for strep..but you took it to an all new level!
September 4th, 2010 at 5:01 pm
Oh, my. Oh, Bon.
Scary and awful. But beautifully spun. Hope your hurricane became a nor’easter, instead.
September 4th, 2010 at 7:27 pm
I read this whole piece on one long, sharp intake of breath. I’m so glad you’re OK. That final paragraph. Oh god. That is such a perfect articulation of privilege, Bon.
Sending my absolute best wishes to you.
September 4th, 2010 at 8:46 pm
Wow. What an ordeal. You tell it so well. Here’s to full and speedy recovery!
September 4th, 2010 at 11:46 pm
Holy shit! So sorry to hear about your ordeal. Sounds awful friend. Hope you are feeling better soon.
September 5th, 2010 at 6:34 pm
Coming late to this so I hope by now your headache has gone and you are all better. A very scary ordeal for you. Sorry you had to suffer that one nurse. She is the kind of health professional who makes you realise the worth of an advocate fighting your corner.
September 6th, 2010 at 9:24 pm
well told – and it needs to be told!! and I wish you good health – and oh, those penicillin allergies SUCK -
September 7th, 2010 at 4:31 pm
holy creeps!
I am glad you are feeling better. sending much, much love.
September 10th, 2010 at 10:44 pm
Dear Bonnie,
Very powerful words about an equally powerful experience. Having worked in an Emergency Room for three years, I know too well the manner in which some “types” of patients are treated, or mistreated. Mental health patients, as well as others with less desirable conditions, are often relegated to a dimly lit hallway, and tended to by condescending healthcare workers and amped up security.
Diagnoses and flip charts take precedence over the patient’s words. Professional first impressions are considered more heavily than personal history. Stereotypes trump exceptions to the rule. You should fit into a box, Bonnie, didn’t you know that? A nice, clean and sterile, but overcrowded box.
I am smiling at how you are able to learn from this unfortunate affair. Only you could derive your own Ph.D orientation out of such an ordeal. In some ways, it is a privilege to have been “on the other side” of things, even if allergically induced. Not very often can we take the time to walk in someone else’s troubled shoes. Maybe we should give that nurse some amoxicillin and turn off the lights…
Denise
September 14th, 2010 at 8:47 am
What a horrid ordeal. You’re amazing for getting through it, let alone blogging so eloquently about it while enduring a raging headache. I’ve been vulnerable to the human frailty of medical power and paid a different price, but learned a similar lesson.